Basics of neurological disorders for primary care
physicians
Neurological disorders include structural,
biochemical, or electrical abnormalities in the brain, spinal chord, or the
nerves leading to or from them, resulting in a wide range of debilitating
symptoms. Neurologic disability is on the rise and may be considered a “hidden”
epidemic for India, soon to join the burden of infectious and chronic diseases.
Neurologic disability is mainly a result of several trends: an increase in
traumatic brain injuries (TBI) from road traffic incidents (RTI), an increase
in age-related chronic diseases such as dementia and stroke, and a continuing
presence of neuroinfections.
Key
Point: Neurologic disability patients often need rehabilitation in
walking, balance, coordination, pain management, speech, and cognitive skills.
Primary care providers will be the most important treatment resource to many
patients who cannot afford the costs of rehabilitation institutions.
The social stigma associated with disability in
India makes seeking proper treatment more difficult for the disabled. People
who suffer from neurologic disability may experience symptoms such as
paralysis, muscle weakness, spasticity, pain, speech impairment, difficulty
walking or standing, and psychosocial issues, including depression, cognitive
decline, and social isolation. Inadequate treatment and long-term care of the
neurologically disabled will strain the healthcare system, strain the economy,
and lower the quality of life for many.
“…while the overall
life expectancy in India is increasing, the overall quality of life will be
diminished by the increasing prevalence and duration of neurologic disability.”
-Das A, Botticello AL, Wylie GR, Radhakrishnan K. Neurologic Disability: A Hidden Epidemic for India. Neurology Nov 20, 2012; 79:2146-2147.
-Das A, Botticello AL, Wylie GR, Radhakrishnan K. Neurologic Disability: A Hidden Epidemic for India. Neurology Nov 20, 2012; 79:2146-2147.
Primary care physicians (PCPs) are not
usually trained to manage neurologic disabilities, however it is important for
primary care physicians to prevent events that may lead to disability, identify
neurologic disability in its early stages, provide basic rehabilitation when
possible, and refer to a more specialized rehabilitation institution when the
disability is severe. To the many patients who cannot afford the costs of
rehabilitation institutions, their PCP will be their most important treatment
resource.
Not all neurological disorder patients have
access to rehabilitation. A recent cross-sectional study investigating
disability in rural areas of Uttar Pradesh observed that the main barriers for
neurological rehabilitation were first financial problems followed by lack of
awareness, family negligence, and transportation problems.
Common Neurological
Disorders in India
Common neurological disorders in India include
traumatic brain injury (TBI), stroke, dementia (considered a disease and not a
normal part of ageing), neuroinfections, and cerebral palsy. Many of these
disorders may be prevented with early and proper treatment.
·
Reduce risk of stroke with lifestyle or
pharmacotherapy interventions.
·
Prevent infections that can cause disability by
administering vaccines, such as for polio, meningitis, tetanus, etc.
·
Educate parents on preventing injuries to the
brain in infants.
·
Minimize incidence of TBI from road traffic
accidents by reminding patients to take caution when walking, riding, or
driving in the road, and to wear proper safety equipment such as helmets and
safety belts.
Rehabilitation
Community reintegration is an important goal for
the patient after an injury.
·
Rehabilitation for community reintegration in
India often emphasizes improving locomotor skills for increased physical
independence, social integration, and cognitive independence.
Accessibility and affordability affect
rehabilitation outcome.
·
Family members provide most of the care of
disabled persons, since many PCPs are not trained for managing neurologic
disability and since institutional care is present in only a few metropolitan
cities in India.
·
When rehabilitation institutions are present,
affordability becomes another barrier – the family of the disabled must pay
most of the healthcare costs.
Primary care physicians provide the first access
to treatment and patient resources.
·
Caretakers of patients who cannot afford
continuing specialized care will look for advice on home care and basic
rehabilitation.
·
Patients often need rehabilitation in walking
(gait), balance, coordination, pain management, speech, and cognitive skills.
·
Disabilities that show severe symptoms may need
to be referred to specialized treatment centers. Patients ultimately may need
to consult a physiotherapist, speech therapist, psychologist, psychiatrist,
neurosurgeon, or other specialist.
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